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The SCAR Project: UPDATE

Overall, my meeting with Facebook to discuss my Change.org petition was really positive. Facebook’s representatives said they’re fully supportive of The SCAR Project and that they do allow mastectomy...

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Progression

When I ended the call I stared at the screen looking for an app that I could consult for answers.  But the reality?   There was no app. I had just spoken with my oncologist and learned that Tamoxifen,...

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Kobayashi Maru

My latest paincation was intense and it was made more so by the experience of radiation. Now, like most things in this disease I was fortunate: only five consecutive days and maybe twenty minutes of my...

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The Whole Chronic Thing

When I was first diagnosed with metastatic breast cancer, I wanted a second opinion.  It wasn’t that I thought another physician would tell me that I was fine, I just wanted to hear another take on the...

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The Robber Baron

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Let’s Make a Deal

In what has become an early spring event, I am looking at my second bone tumor crisis. Just at the moment that I felt fabulous and had an energy level that I had not felt since before I was diagnosed...

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Released from Prison

Where the hell have I been these past few months? Well, ever since my last episode with radiation of a painful bone tumor in my sacrum, I seem to have misplaced my voice. It could likely be lost among...

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Xgeva

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Remission

The Catch-22 of having metastatic breast cancer is this: when you’re caught in a period of crisis all you hope for is that your scans will improve, the pain will lessen or go away, your energy will...

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Open Letter to Joan Lunden

I want to thank Joan Lunden and the people of TODAY of putting the spotlight, however brief, on metastatic breast cancer–the one that no one talks about.  A link to the TODAY spot is below....

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